Diana Prince
Co-Founder
About
Diana is the proud mother of a young VCUG survivor. Together, they are committed to creating community and change. After undergoing three VCUGs as a preschooler, Diana’s daughter developed PTSD as a result of VCUG trauma. After connecting the dots in early 2022, their family started therapy and embarked on a quest to find a support group for their daughter.
Thanks to Reddit, Diana was able to connect with the other founders and to hear their stories first hand. After some groundbreaking Zoom meetings, Diana invited her daughter to come meet her new people. Since then, the relationships within the group have been instrumental in her daughter’s healing journey, and in inspiring Diana to passionately pursue activism in this space.
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Diana’s focus is on creating reform within the healthcare system’s delivery of pediatric care, especially concerning the VCUG. For the millions of family’s dealing with VUR (vesicoureteral reflux) there is very little support, information, coordination of care, and community. Because there has been no research on the long term mental and physical health consequences of the test, parents are unable to give informed consent because the real risks are never disclosed to them. Medical providers and associations must be held responsible, and need to commit to research and protocol changes.
In order to catalyze some changes, Diana is working with law firms to explore medical malpractice lawsuits and mass tort cases. Her vision is to drive down the highway in the near future and to see a billboard proclaiming, “If you or a loved one underwent a VCUG as a child, you may be entitled to compensation.” Her other goal is to make sure that no other families have to endure the yearslong mental and physical pain of VCUG trauma that could have been prevented.